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John's Campaign

for the right to stay with people with dementia

for the right of people with dementia to be supported by their family carers

We're pleased to say that the Lib Dem, Labour and Plaid Cymru manifestos all contain specific pledges supporting the right of people in health and social care settings to maintain contact with those who mean the most to them.

Experiences

Throughout the campaign people have written in - often via our Facebook and Twitter pages - showing support and sharing their stories. This is an area that has grown hugely (and distressingly) in the past year. We intend, therefore, to find some more meaningful way of recording these, perhaps on a dedicated site.

People are often willing to write about sad (even traumatic) events, in the hope that these will help others in the future, and we are very grateful to them for doing so. Please note that we never share people's experiences without their express permission.

The experiences below were contributed whilst we were a hospital access campaign.

You will find many individual experiences on our blog page, and also in our Voices collections. Voices I and II are overlapping booklets produced for distribution at our London and Scottish conferences. Some of the speakers at the London conference were recorded and can be listened to on our YouTube page. Voices III represents some specific research into the experiences of people with dementia in the mental health system. Some names were changed on these pages, but all are included with permission. Voices IV records a moment in the summer of 2018, when we asked all the English hospital trusts to review the pledges they had made and to share resources and articulate their support.

We're pleased to say that the Lib Dem, Labour and Plaid Cymru manifestos all contain specific pledges supporting the right of people in health and social care settings to maintain contact with those who mean the most to them.

Experiences

Throughout the campaign people have written in - often via our Facebook and Twitter pages - showing support and sharing their stories. This is an area that has grown hugely (and distressingly) in the past year. We intend, therefore, to find some more meaningful way of recording these, perhaps on a dedicated site.

People are often willing to write about sad (even traumatic) events, in the hope that these will help others in the future, and we are very grateful to them for doing so. Please note that we never share people's experiences without their express permission.

The experiences below were contributed whilst we were a hospital access campaign.

You will find many individual experiences on our blog page, and also in our Voices collections. Voices I and II are overlapping booklets produced for distribution at our London and Scottish conferences. Some of the speakers at the London conference were recorded and can be listened to on our YouTube page. Voices III represents some specific research into the experiences of people with dementia in the mental health system. Some names were changed on these pages, but all are included with permission. Voices IV records a moment in the summer of 2018, when we asked all the English hospital trusts to review the pledges they had made and to share resources and articulate their support.