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John's Campaign

for the right to stay with people with dementia

for the right of people with dementia to be supported by their family carers

It's Dementia Action Week. Bolton NHS Foundation Trust have produced this Johns Campaign video together with Bolton University and Bolton Dementia Support. Applicable everywhere.

Experiences

Throughout the campaign people have written in - often via our Facebook and Twitter pages - showing support and sharing their stories. This is an area that has grown hugely (and distressingly) in the past year. We intend, therefore, to find some more meaningful way of recording these, perhaps on a dedicated site.

People are often willing to write about sad (even traumatic) events, in the hope that these will help others in the future, and we are very grateful to them for doing so. Please note that we never share people's experiences without their express permission.

The experiences below were contributed whilst we were a hospital access campaign.

You will find many individual experiences on our blog page, and also in our Voices collections. Voices I and II are overlapping booklets produced for distribution at our London and Scottish conferences. Some of the speakers at the London conference were recorded and can be listened to on our YouTube page. Voices III represents some specific research into the experiences of people with dementia in the mental health system. Some names were changed on these pages, but all are included with permission. Voices IV records a moment in the summer of 2018, when we asked all the English hospital trusts to review the pledges they had made and to share resources and articulate their support.

It's Dementia Action Week. Bolton NHS Foundation Trust have produced this Johns Campaign video together with Bolton University and Bolton Dementia Support. Applicable everywhere.

Experiences

Throughout the campaign people have written in - often via our Facebook and Twitter pages - showing support and sharing their stories. This is an area that has grown hugely (and distressingly) in the past year. We intend, therefore, to find some more meaningful way of recording these, perhaps on a dedicated site.

People are often willing to write about sad (even traumatic) events, in the hope that these will help others in the future, and we are very grateful to them for doing so. Please note that we never share people's experiences without their express permission.

The experiences below were contributed whilst we were a hospital access campaign.

You will find many individual experiences on our blog page, and also in our Voices collections. Voices I and II are overlapping booklets produced for distribution at our London and Scottish conferences. Some of the speakers at the London conference were recorded and can be listened to on our YouTube page. Voices III represents some specific research into the experiences of people with dementia in the mental health system. Some names were changed on these pages, but all are included with permission. Voices IV records a moment in the summer of 2018, when we asked all the English hospital trusts to review the pledges they had made and to share resources and articulate their support.